Amidst Bruce Willis’ diagnosis of frontotemporal dementia, his wife, Emma Hemming, reflects on their journey, expressing gratitude for their resources while acknowledging the challenges faced by others in similar situations.
In an article penned for Maria Shriver’s Sunday Paper, Emma opens up about the complex emotions she grapples with in the wake of Willis’ diagnosis. Despite the difficulties associated with frontotemporal dementia, which can lead to communication problems, Emma emphasizes her awareness of the privileges her family possesses.
As reported by Us Weekly on November 14, “I struggle with guilt, knowing that I have resources that others don’t,” Emma reveals, recognizing the disparities in access to support and care. Her contemplation extends to moments of respite, such as hiking to clear her head, where she acknowledges the limitations faced by many care partners who may not have similar opportunities.
Emma, who shares two children, Mabel and Evelyn, with Bruce, expresses occasional feelings of remorse but acknowledges her role as a representative for others in similar situations. “I see that what I share matters to others who may be struggling, and in a small way makes them feel seen and understood,” she articulates.
The 45-year-old emphasizes her commitment to being an advocate on behalf of families affected by frontotemporal dementia, particularly those lacking the time, energy, or resources to advocate for themselves.
Emma’s reflections underscore the complexities of their family’s journey, emphasizing the shared experiences of grief, loss, and immense sadness with other families navigating the challenges posed by this neurological condition.